Inconclusive Diagnosis after Newborn Screening for Cystic Fibrosis

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چکیده

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Inconclusive diagnosis of cystic fibrosis after newborn screening.

OBJECTIVES To prospectively study infants with an inconclusive diagnosis of cystic fibrosis (CF) identified by newborn screening (NBS; "CF screen positive, inconclusive diagnosis" [CFSPID]) for disease manifestations. METHODS Infants with CFSPID and CF based on NBS from 8 CF centers were prospectively evaluated and monitored. Genotype, phenotype, repeat sweat test, serum trypsinogen, and micr...

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Feature: Newborn Screening for Cystic Fibrosis

Cystic Fibrosis is an autosomal recessive disease affecting the exocrine glands of the lung, liver, pancreas and intestines. It leads to a diverse range of clinical problems. Although most patients have multiple organs involved, pulmonary disease is the principal cause of both morbidity and mortality in the majority of patients. Cystic Fibrosis is the result of abnormalities in the gene that co...

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Newborn Screening for Cystic Fibrosis in California.

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Implications of carrier identification in newborn screening for cystic fibrosis.

OBJECTIVE To investigate the psychosocial implications for families whose infant was identified as a cystic fibrosis carrier by newborn screening. DESIGN Prospective psychosocial assessment. SETTING Primary care. RESPONDENTS STUDY (a) families of an affected infant identified by screening (n = 9); (b) families of a carrier infant identified by screening (n = 10). CONTROL group of mot...

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ژورنال

عنوان ژورنال: International Journal of Neonatal Screening

سال: 2020

ISSN: 2409-515X

DOI: 10.3390/ijns6010019